
CLARYVILLE, N.Y. (AP) — Autoimmune diseases like lupus, myositis and forms of arthritis can strike children, too. At a sleepaway camp in upstate New York, some young patients got a chance to just be kids.
That’s how a 12-year-old recently diagnosed with lupus found himself laughing on a high-ropes course as fellow campers hoisted him into the air.
“It’s really fun,” said Dylan Aristy Mota, thrilled he was offered this rite of childhood along with the reassurance that doctors were on site. If “anything else pops up, they can catch it faster than if we had to wait til we got home.”
Autoimmune diseases occur when your immune system attacks your body instead of protecting it. With the exception of Type 1 diabetes, they’re more rare in kids than adults.
“It’s very important that people know that these diseases exist and it can happen in kids and it can cause significant disabilities,” said Dr. Natalia Vasquez-Canizares, a pediatric rheumatologist at Children’s Hospital at Montefiore in New York.
When symptoms begin early in life, especially before puberty, they can be more severe. Treating growing bodies also is challenging.
Montefiore partnered with Frost Valley YMCA to bring several children with autoimmune diseases to a traditional sleepaway camp, after reassuring parents that doctors would be on hand to ensure the kids take their medicines and to handle any symptom flares.
“Their disease impacts how they can participate and a lot of the time the parents are just very nervous to send them to a summer camp,” Vasquez-Canizares said.
Ethan Blanchfield-Killeen, 11, has a form of juvenile idiopathic arthritis, causing joint pain and stiffness and “my legs get, like, sleepy.”
But at camp, Ethan said he’s mostly forgetting his illness. “The only time I get pain is like when I’m on long walks, my legs start getting stiff, and then I kind of feel pain, like achy.”
One day a doctor examined his hands at camp. Another day, he was running across the lawn splattered in a fierce game of paint tag.
“It’s really nice just doing the special activities and just messing around with your friends and all day just having a blast.”
To the doctor, forgetting their chronic disease for a little bit was the point.
“They blend perfectly with the other kids,” Vasquez-Canizares said. “You can just see them smiling, running, like any other normal child.”
___
Neergaard reported from Washington.
___
The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute’s Department of Science Education and the Robert Wood Johnson Foundation. The AP is solely responsible for all content.
___
This is a documentary photo story curated by AP photo editors.
latest_posts
- 1
Getting breast implants was a mistake I live with every day. Why I’m sharing my story now, at 70, in pain and afraid. - 2
Hamas Navy head, engineer of Khan Yunis tunnel network killed in Gaza, IDF confirms - 3
Former biotech CEO sued over COVID vaccine alleged insider trading - 4
Figure out How to Improve Your Stream Voyage with Remarkable Trips and Exercises - 5
Vote In favor of Your Favored Shimmering Water
Exposure to neighborhood violence leads some Denver teens to use tobacco and alcohol earlier, new study shows
Dave Coulier shares new cancer diagnosis 1 year after revealing previous diagnosis
Tech for Learning: Online Courses and Instructive Apparatuses
Songbirds swap colorful plumage genes across species lines among their evolutionary neighbors
6 U.S. States for Climbing
5 Bike Brands for Ordinary Use
Man who grabbed Ariana Grande at 'Wicked: For Good' premiere also rushed Katy Perry onstage this year. Who is he and why is he doing this?
The Quadrantid meteor shower peaks tonight, but will the full 'Wolf Moon' outshine the show?
New research reveals urban raccoons across the US show early signs of domestication












